‘Designer Disability’: Newsmaker Interviews With Richard Alastair Preiss, FRCS, MBChB, and Ellie E. Rosenfeld, MPH

Laurie Barclay, MD Oct. 16, 2002 —

Editor’s Note: A deaf lesbian couple in the U.S. have deliberately created a deaf child by selecting as a sperm donor a deaf friend with five generations of deafness in his family, according to a report in the Oct. 5 issue of the British Medical Journal. Both members of the couple are mental health professionals who view their deafness and communication by signing not as a disability, but as defining their unique cultural identity. In an Education and Debate article, Julian Savulescu, director of the Oxford Centre for Applied Ethics in the U.K., argues that couples with a disability should have the right to use prenatal genetic testing of their fetus or in vitro fertilization and preimplantation genetic diagnosis to deliberately select a child with that disability, whether it be deafness, dwarfism, or intellectual disability. “As rational people, we should all form our own ideas about what is the best life,” he concludes. “But to know what is the good life and impose this on others is at best overconfidence — at worst, arrogance.”

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